The Understandable:
Long-term antibiotics have not sufficiently been documented for effectiveness in double-blind studies. Thus, such treatment is considered experimental and risky.
The Inexcusable:
The ELISA test is less than 80% precise by a fair margin. Despite the certain mass of people who will be falsely tested negative, there are no procedures for picking up those in the health-care system. They officially have no infection, but there's a statistical, mathematical certainty that at least some still have the infection. In Denmark, about 50.000 people get infected yearly. If a similar number take the ELISA test, it's fair to predict at least 1000 false negatives yearly. In that order of magnitude, people will be left to their own families for support and might never take responsibility for the infection (anti-inflammatory diet, rest, stress-free life) because they are told they are now 'safe', after the negative result. They are the ones left to true experiment and risk.
I respect experts a lot. They do their best. But uncertainty must be recognized, unless we disregard the consequences for those caught on the wrong side of results.
My body has acted strangely after a tick-bite the 6th of may '12. I had summer fever. I had the rash. I had extreme fatigue. I had twitches. Etc. But after an Elisa-test, it was "all in my head". Classic lyme/borrelia story initiated. What will happen from here? Am I even infected? I've had wonderful days in that garden, never thinking that nearby presence of deer, dogs and mice could affect my life. A healthy 23-year-old before then, I cannot today look at a lawn in the same way.
mandag den 14. april 2014
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Jeg genkender alle dine symptomer, med få undtagelser. Mit forløb har været mere langvarigt, men mindre intensivt, jeg blev nemlig sandsynligvis smittet som 9-årig, og nu er jeg 39. I de senere år har jeg ovevejet om det var ME/CFS (kronisk udmattelsessyndrom) eller fibromyalgi. Jeg syntes dog, at nogle ting passede bedre med en infektion, så jeg tog til en læge i Tyskland med specialisering i borrelia. Hun mener, at der ikke er nogen tvivl, og jeg skal i behandling.
SvarSletDu kan godt opgive at kæmpe med det danske sundhedssystem, det er både arrogant, absurd og ret inkompetent. Jeg har været hos meget få læger, som lyttede til hvad man sagde - oftest private, som man selv betaler for. Men det betød ikke, at de kunne hjælpe mig. Løselig vurderet er højst 5 % af danske læger bredt kompetente og selvstændigt tænkende - og kun 5 % er flinke og loyale mod patienten - og dermed er kun 5 % gange 5 % begge dele. Og det er jo ikke ret mange. Jeg tror endda jeg sætter andelen af de dygtige for højt.
Det er en skam, at der ikke er kontaktmulighed på din blog, og at man ikke kan kommentere anonymt. Login betyder som regel, at der ikke kommer ret mange kommentarer. Mon ikke du har brug for at tale med nogen, der er i samme situation?